From Patients to Partners the unique role of Patient Organizations in accelerating Clinical Development for Rare Diseases
Is patient centricity only a “buzzword”? Or can patients be bio-pharma's secret weapon to accelerate clinical development? Patients are often “just” considered subjects to enroll for clinical trial. But the role that patients can play in clinical development goes well beyond that, especially for rare diseases. From leading advocacy efforts to influencing policies and regulations. From driving better study design and endpoint selection to breaking the data silos and driving technology adoption.
This keynote will bring to life concrete examples of how industry should partner with patient organizations through the eyes of a mother, fighting for a treatment for the rare and currently untreatable disease affecting her own daughter.
Speaker
Silvia Cerolini, CEO, Eyes on the Future