Silvia is the Founder and CEO of Eyes on the Future, a non-profit accelerating research on Inherited Retinal Dystrophies (IRD)—rare genetic diseases that cause blindness in children. Her motivation is personal. Her 11-year-old daughter, Vicky, was diagnosed with an untreatable form of IRD and is slowly losing her sight. Silvia now leads a global patient organization uniting families from over 20 countries. Together, they have raised more than $6 million to drive research forward, advancing treatments from drug repurposing to gene therapy. Faced with the lack of investment in rare and ultra-rare diseases, she is now pioneering a new model where patients and families act as co-developers of an innovative gene therapy. Over the years, her work has gained international recognition—from Forbes to the BBC to Vanity Fair. Today, alongside her non-profit work, Silvia is also Head of Transformation at Sanofi UK and Ireland. She believes that by combining true patient partnership, data, and innovation, we can transform life sciences and bring hope to families like hers.